Having our omic cake and eating it too: Evaluating User Response to using Blockchain Technology for Private Secure Health Data Management and Sharing

04/24/2020

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by   Victoria L. Lemieux, et al.

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This paper reports on the development and evaluation of a prototype blockchain solution for private and secure individual omics health data management and sharing. This solution is one output of a multidisciplinary project investigating the social, data and technical issues surrounding application of blockchain technology in the context of personalized healthcare research. The project studies potential ethical, legal, social and cognitive constraints of self-sovereign healthcare data management and sharing, and whether such constraints can be addressed through careful user interface design of a blockchain solution.